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About  Me




Heidi Lindborg

Seattle WA, USA

Orexin Zombie

Age: 47   Onset: Infancy

Status: advanced, in remission

HLA:  DQB1*0604 and *0202






I am the luckiest person in the world.   I am pretty sure of that.


I have been gluten free since August 13, 2007.  No cheating, not even once.  I'm too afraid I'll be sucked back into the void and be unable to escape again...


I haven't felt this good since high school.  I do still have residual effects since I killed off my orexin cells-   it takes a little while and a lot of coffee to get fully alert in the morning and I probably won't ever be perky again.  But I NEVER have nap attacks, and can think as clearly as I ever could.   It's extraordinary.


I have a degree in biology and a master's in library science.  I specialized in classification and indexing, and worked as a pharmaceutical librarian for a while.  I've been unemployed for five years, doing a form of remodeling and domestic categorization I call "pile management".  Since my illness it's been an exercise in physical and intellectual organization.  I take my house apart and put it back together, and when I have an idea I go look something up on the internet.  I surf Medline and fill up my synapses with neuroscience and go back to working on the house.   I listen to old songs and just let the data simmer in my brain.  After a while associations start to nag at me and I mentally manipulate them until a possible underlying mechanism reveals itself.  And then I have to sit at the computer and surf PubMed for a few days or weeks and try to retrace and verify and document my thoughts.  


My husband is at least as geeky as I am.   But our subject areas don't overlap much.  I'm carbon based, he's silicon.  He makes databases, I am becoming one.  His expertise involves computers and electronics, and I take advantage of him by not learning any of it and shamelessly relying on him for tech support.   He actually believed me when I told him I was doing innovative medical research at the kitchen table.   Most guys would have had me committed right that minute.  We'll see what happens after he reads these pages...


This really isn't what I expected to be doing right now.  I just wanted to be able to drive again.  

And every time I do, I think "I am the luckiest person in the world!".




Thanks to everyone who contacted me this past few years.  Especially those of you who replied even after I started asking really weird questions.  Your input was invaluable - I really appreciate your candor.  

DoublePlusInfinite thanks to my research assistant for collecting my scattered thoughts and providing sanity checks while I surfed the obsession. 



March 2009




My Story-  the account of my illness, experiment and remission.   edited from my original website.




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